Friday, December 16, 2011
My little (er, big....) family feels like a normal(ish..) family finally! I feel like the NICU days are a thing of the past and I have an amazing and loving toddler and 2 wonderful baby boys. I am happy to say that Dacember holds not a single Dr's appointment for the twins! While this sounds like such a simple accomplishment, it felt damn near impossible only 3 months ago when the boys first came home. Yes, I said 3 months ago! Tomorrow is the 3 month anniversary of the day we finished our NICU stay and brought Trev home!!!
Typically with a baby, every new accomplishment is filled with joy and excitement as parents get to watch their little one grow and learn about the world. Babies who are born prematurely and thrive in the NICU and are discharged are not in the clear with their health. They are at a greatly increased risk of having numerous disorders. Every little normal accomplishment (smiling, eating, rolling over, sucking thumb, kicking both legs) is now so much more than a milestone where I get to watch my boys grow. I watch them accomplish new things and I feel like I am watching them overcome the odds. It's a wonderful thing to see positive progression of their development! And both boys so far seem to be right on point with their growth!
Dax loves to beam his smile across the room and cannot get enough of people smiling back at him. Well, until he's had enough. Then he will let you know! When Athan got tired as a baby, he simply stopped playing and went to sleep. When Dax gets tired, it's everyone's problem until he falls asleep! However, he doesn't want you to feed him, burp him, cuddle him, wrap him, talk to him, hold him or put him down until he is asleep. He LOVES his swing. When he gets his screaming/I'm tired moods, sometimes the only thing he likes is the swing. We can hold him and make the exact same motion while swinging us in his arms but it is simply not the same in his eyes. I think it is just too much stimulation for him perhaps.
Trev finds so much satisfaction in sticking his tongue out at people. It seems every night, after I get home from work, the first thing he does is stick his tongue out and then smile at me. I predict he will be the shy one of my children as he is very specific as to when he chooses to talk to us and when he just wants to look. When Trev was born, he appeared to have a receding hairline and very thin hair. I assumed he got my side of the families hair traits. Then, one day, I woke up and it seemed that hair had sprouted overnight. Suddenly, I saw a little baby Matt head. It's so cute!
We have good control of Trev;s blood pressure now with medicine still. Our last visit to his nephrologist went well. While his BP is still elevated, a healthy blood pressure increases as you grow. Since he has done so much growing and his BP hasn't been increasing, it is technically getting better. We checked it today and he was at 101/49. Much better than in the past.
We went to Shriner's Hospital for Children in Sacramento last month to speak with a specialist about Dax's spine. All I can say is WOW. Shriner's is an amazing resource with amazing people! I have never had such a wonderful experience at a medical facility before. We arrived and checked in and someone escorted us to the lobby, which is gorgeous. Then we saw a resident Dr. first and shortly after, the attending Dr. She ordered a new round of X-rays and we were escorted to the X-ray department. We waited, maybe, 3 minutes in the waiting room for X-rays and then went back to the Dr who had the X-rays already. All in all, we spoke to a specialist, got X-rays and followed up on them within maybe 2 hours. Can you imagine that at any other hospital?? Nope! And it's completely free!!
Anyhow, I expected to see the specialist and get an idea of when she planned to perform surgery to fix his spine. Instead, she tells us that many children with spinal abnormalities grow with a perfectly straight spine and that his is currently not showing any curvature. The plan is to continue X-rays every 6 months as he grows and watch for signs of curvature. If it happens, we plan treatment then. He may never need surgery! Time will tell!
I have so much to be grateful for this holiday season! I hope you all have a wonderful Christmas and a Happy New Year!!
Friday, October 28, 2011
Thursday, October 13, 2011
Tuesday, September 20, 2011
Saturday, September 3, 2011
Wednesday, August 24, 2011
Thursday, August 11, 2011
They're growing so fast, before we know it they are going to be "newborns" graduating from the NICU!
- Prefer Classical Music
- Your Left-Brain controls the right side of your body
- Prefer things like instructions to be done verbally
- Good at math
- Like to read
- Follow Western Thought*
- Very Logical
- Dog lovers
- Don't enjoy clowning around
- Can't be hypnotized
- Usually remember things only specifically studied
- Need total quiet to read or study
- Like to read realistic stories
- Like to write non-fiction
- Prefer individual counseling
- Enjoy copying or tracing pictures and filling in details
- Also like to read action stories
- Usually rational
- Usually do things in a planned orderly way
- If you have to answer someone's question, you won't let your peronal feelings get in the way
- Good at algebra
- Can remember verbal material
- Almost never absent minded
- Like to tell stories but not act them out
- Can think better sitting down
- Like to be a music critic
- Attentive during long verbal explanations
- Prefer well structured assignments over open ended ones
- Read for specific details and facts
- Skilled at sequencing ideas
- Likes to be Organized
- Lab scientist
- Skating judge, skiing judge, etc
Below is a list of things that left brained people are good at or they like and things that are done in the left brain.
*Eastern and Western thought: A doctor in an a country like China would first ask a person how they are doing and what else is going on in their life before they give them medicine. A doctor in North America would just ask them what their symptons were and then give them medicine.
Here are some occupations that are USUALLY fufilled by a left-brained person. (There are always exceptions)
- Dax is coasting along just fine since getting off the ventilator on 8/1. I finally heard him let out a good cry last night which was sowonderful to hear. It may seem weird to enjoy the sound of your baby crying but a good cry shows a lot about a baby's determination and health. It was very nice to get that piece of mind that his lungs are finally strong and ready to tell the world his story!Matt and I got to give both boys a full bath last night for the first time too! It was very nice and a "normal" thing to do! They both loved their baths and were so cute!